Monday, March 8, 2010

Mystery Therapy

Wednesday morning I will have my first physical therapy appointment. When I saw a specialist 2 weeks ago, he concluded that I certainly have PCOS, but luckily, I do not have the metabolic symptoms (weight gain, high blood pressure). He also determined that my pelvic floor muscles are EXTREMELY tight (vaginismus), thus, I am having constant involuntary contractions. He said this could also be related to a history of trauma and he noted that it's a positive step that I am working through that in therapy. The plan is that I will go to weekly physical therapy and if there is not a drastic improvement in my pain over the next 4-6 weeks, he will perform a laparoscopy (finally). I have been in so much pain lately that I have begged my general gyno to do one, but she refuses since I had one 6 years ago that provided no answers. However, this doctor told me that he can tell from looking at my incision scars that there was no way they were able to see everything from where they entered the scopes before (swear word), so since he does them routinely he is confident that if there is something going wrong in there he will find it. Wow, I just wanted to hug him! It felt soooo good to have a doctor give me some actual answers and directions rather than throwing hormones and pain pills at me. I am so curious (and a little nervous) to see what this physical therapy is like. I am sure it will be a little awkward. I promise to post as many details as possible for those of you who may face this unknown in the future. It is really not something that's talked about.... Wish me luck!


  1. KD,

    I was diagnosed with pelvic floor dysfunction and I've had physical therapy. I found it helpful. Interestingly, I found it more helpful for IC symptoms than anything. (That was before my IC was officially diagnosed and so I was not on any medication for IC at the time I had the PT).

    I hope PT is helpful for you. I'm glad you have found a doctor who is taking your symptoms seriously and not dismissing you over what happened during a surgery 6 years ago. A lot can change in 6 years and, from what you described, it sounds like maybe your first surgeon may not have been as highly skilled in locating and removing endometriosis as your current doctor.

    Some doctors don't make enough incisions to be able to see! Some simply aren't familiar enough with all of the different appearances of endometrial tissue. Some don't have enough experience with endo.

    Good luck!


    P.S. You just let me know if you want a cute little blue badge for the endometriosis awareness petition for your blog. I'll be happy to send you the code. :)

  2. I would love a badge! Thanks!!